Apparently I Have An Invisible Disorder

Alcoholism is recognized by the government in a disability claim, but DID is not allowed. I know someone who got disability due to alcholism. But when I put DID on my form, along with all the other delibilitating issues I was dealing with, the form came back to me typed out ommiting DID. The letter wrote that I should sign the form and mail it back.

I had been told by other survivors that it would not be allowed as a disability. I wrote down PTSD on the form as well, and that was included on the returned form. Apparently my dissociation issue was so bad, it just didn’t exist any longer. Who’d a thunk it.

I just didn’t realize they would make it invisible and make my disorder disappear. I didn’t know that they would refuse to write it down on the typed form. So what if they didn’t accept it as a disability, which is bullshit. It should be on the form, everything else I was dealing with was on the form, whether or not it could be a final determining factor in my being qualified to being on disability or not.

I brought it up with my meeting with the psychiatrist who evaluated me. He did not answer my question about why it was not on the form. Instead he asked me how do you see that (being multiple, DID)? I told him. He moved on to the next question. He was interested, I could tell. But he was working those thirty mintues for the government and they don’t see me or what I was dealing with. To them, I have an invisible disorder.

Must be nice to be able to do that. I just don’t feel healed.

8 thoughts on “Apparently I Have An Invisible Disorder

  1. Hi Kate,

    It must be so nice to be able to disregard DID and its complications so cleanly and easily. Yuck. It’s one thing for DID not to be “applicable” in certain situations (I could so go off about this), but to completely erase it like you never included it is disrespectful and just plain WRONG. I’m sorry.

    Elle

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    • Hi Elle,

      Yes I thought it was a nice, quick, and easy method of ignoring the consequences of early childhood sexual abuse. Thank you. I appreciate your comments.

      I started making a long response and realized I should make a part two to this one. I will post it on Tueday, once I have more time to add to it. Thanks for being here.

      Good and healing thoughts to you.

      Kate

      Like

  2. This makes me angry. I work with people all day who tell me they were just accepted for SSI or SSDI and they only have PTSD or they get regular headaches. Makes me sick. I also have the invisible DID – if they only knew…

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    • Hi Ivory,

      I’m sorry. I don’t think anyone knows what kind of headaches a multiple can have and can understand, except someone who has migraines.

      I don’t like being invisible. I don’t think that my survivorhood, my strength, my compassion, my courage is being honored, but rather disrespected. And I object to that. Good and healing thoughts to you.

      Good and healing thoughts to you.

      Kate

      Like

    • Hi Butterfly,

      Thank you. I think it is important not to be silenced. Survivors may be a minority in our society and even more so those of us with DID, but we deserve the right to be heard. Thank you.

      It had been in my therapy records, on and off for over 15 years, so there was no reason for me to hide it and enough documentation that I didn’t feel they had any right to deny it’s reality.

      Good and healing thoughts to you.

      Kate

      Like

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